If you are reading this page, your life, in some way, is being affected by Spina Bifida. This is a shock to all that have heard those words and we understand that feeling. Spina Bifida of Greater Saint Louis ( SBSTL ) is made up of individuals and families that are affected by Spina Bifida in some way from all over the Saint Louis area in Missouri and Illinois. Our group has many things to offer you in learning to cope with the medical, educational and social aspects that Spina Bifida affects and make the most of every day life.
If you are expecting a child with, or have just had a child with spina bifida, the questions you might be asking are "What is it?" and "How will it affect my child ?" SBSTL is glad to help with in this learning process by providing educational brochures that can explain some of the many aspects of spina bifida. While we can not tell exactly how your child will be affected, the information from this material will make it easier to understand the information that your medical providers give you about your child's health and abilities.
Aside from the medical components of spina bifida, there are many social aspects that SBSTL can assist you with. These can go from dealing with the school system to socializing with others affected by spina bifida. SBSTL conducts activities throughout the year that allow families and individuals of all ages to talk and socialize. This time together allows the children to socialize and make friends with others like them, the adults with Spina bifida to socialize with other adults with spina bifida and the families and adults to learn how others have dealt with life challenges. Past activities have included holiday parties, bowling, weekend camping and more. We are always open to new ideas and activities. Most of all, SBSTL offers a wealth of experience from those who have dealt and are dealing with spina bifida - just as you are now.
We hope you find the information on this web site helpful. If you have any questions or would like to talk with someone, please do not hesitate to contact us. We are here to help you and your family.