Spina Bifida - St. Louis

Our Mission: We will provide service, support and opportunities to develop the maximum potential of all individuals born with Spina Bifida and neural tube defects and their families; and to assure development of the best possible quality of life.

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Activity Groups

Activity Groups

We have four main activity groups to cover all ages. Ages 5 and under, 6-12, 13-16 and Young Adult / Adult activity groups. Each group hosts a variety of events throughout the year.

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Events & Calendar

SBSTL hosts a variety of different evens throughout the year, holidays, gatherings, meetups and more. Our calendar changes throughout the year, so check back every so often for new details.

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We have 3 different Grants available for families in the St. Louis metropolitan area.

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We Our Sponsors


Who We Are!
Purpose of our organization

  • To help persons with neural tube defects attain their maximum capabilities.
  • To help promote and provide emotional and educational support for individuals with neural tube defects and their families.
  • To promote public awareness and concerns for all persons born with spina bifida, hydrocephalus, and other related neural tube defects.
  • To advocate for, and encourage enactment of, legislation promoting educational and employment opportunities and the removal of architectural barriers.
  • To promote the development of social skills and to provide opportunities for interaction and networking with other individuals with Spina Bifida.

How You Can Help!
See for yourself.

Helping SBSTL can come in a variety of different ways. We know people are busy, so a very simple easy way to help is to place a donation. However, SBSTL is very active in the St Louis area. We have a variety of Activity Groups, Events and Holidays Events we host throughout the year. Volunteering is a great way to help our community. If you are interested in helping, please contact us today.

Spina Bifida

Spina Bifida is one of the most devastating of all birth defects and it affects approximately one out of every 1,000 newborns in the Saint Louis area.  A neural tube disorder that is both genetically and environmentally determined, spina bifida can cause complex and serious health issues in numerous systems within the body. Children born with spina bifida may need multiple surgeries and other extensive medical care throughout their lifetimes to address orthopedic, urological, neurological and other issues. However, thanks to advances in medical technology, most children born with spina bifida today live well into adulthood and are thriving members of society.

If you would like to join our group or just find out more information, please fill out the Contact Us form. All existing members are highly encouraged to fill out the form each year to ensure that your information is kept up to date so we can get announcements, newsletters, etc.. to you.