New & Expectant Parents
We understand how important it is to have support and resources when you need it the most. Diagnosis Day for your baby is the hardest day. We’d love to offer support for this crucial time of taking in what life for your unborn baby and life as a family will be like.
Below you will find a document of information for new parents that have just learned about a Spina Bifida diagnosis with resources and online support groups.
Spina Bifida Diagnosis Podcast
Listen to the audio stories from parents of Spina Bifida babies about the day they found out about a SB diagnosis and what life looks like for them today.
Jayne B.
Listen to Jayne’s story, told by her parents, Barb and Aaron. Jayne had a postnatal closure in St. Louis.
Baby W.
Join Keri as she tells Baby W’s story of her Spina Bifida diagnosis day and what life is like today. Keri had a postnatal closure in St. Louis.
Oscar
& Rufus
Join Munny as we talk about brothers, Oscar & Rufus, who both have Spina Bifida. Munny had a postnatal closure with Oscar and fetal surgery in Belgium with Rufus.
Augustine
Listen to Augustine’s story, told by parents Amanda and Ben, about his SB diagnosis. Augustine had fetal surgery in Belgium (L1/L2).