New & Expectant Parents

We understand how important it is to have support and resources when you need it the most. Diagnosis Day for your baby is the hardest day. We’d love to offer support and information for this crucial time of taking in what life for your unborn baby and life as a family will be like.

Below you will find a document of information for new parents that have just learned about a Spina Bifida diagnosis with resources and online support groups.

Download New Parent Packet

Spina Bifida Diagnosis Podcast

Listen to the stories from parents of Spina Bifida babies about the day they found out about a SB diagnosis and what life looks like for them today.